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National Data and opting out

NHS Digital is changing how they collect patient data.

This collection will start on 1 September 2021 so if you do not want your data to be shared with NHS Digital please register your Type 1 Opt-out before this date.

Please Click below to view more information on this + how to opt out

The data held in the GP medical records of patients is used every day to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone.

Patient data collected from general practice is needed to support a wide variety of research and analysis to help run and improve health and care services. Whilst the data collected in other care settings such as hospitals is valuable in understanding and improving specific services, it is the patient data in general practice that helps us to understand whether the health and care system as a whole is working for patients.

This data will be shared from 1 July 2021.

Data may be shared from the GP medical records about:

  • any living patient registered at a GP practice in England when the collection started – this includes children and adults
  • any patient who died after 1 July 2021, and was previously registered at a GP practice in England when the data collection started

NHS Digital will not collect patients’ names or addresses. Any other data that could directly identify patients (such as NHS Number, date of birth, full postcode) is replaced with unique codes which are produced by de-identification software before the data is shared with NHS Digital.

More information is available on the NHS Digital Website: General Practice Data for Planning and Research (GPDPR) – NHS Digital

Opting out

If you don’t want your identifiable patient data to be shared for purposes except for your own care, you can opt-out by registering a Type 1 Opt-out or a National Data Opt-out, or both. These opt-outs are different and they are explained in more detail below. Your individual care will not be affected if you opt-out using either option. You can also send an email into [email protected] with details of name, NHS number, address and context. the opt out must be completed per patient.